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What is Autism?
Autism is a lifelong, neurological condition which affects a person’s ability to understand the world and communicate with others around them. Autism affects males and females; there are around 700,000 people with the condition in the UK – this is over 1 in 100. Autism is manifested differently in everyone. It is considered a ‘spectrum condition’ therefore, no two people with autism will be the same. Support must be tailored to the individual’s needs. The dyad of impairments highlights the challenges in social communication and restricted, repeated behaviour patterns and interests.
People with autism may find the following aspects difficult:
There are three theories that can be useful in explaining aspects of autism:
Theory of Mind – struggles with understanding other people’s thoughts and intentions and a difficulty with predicting other people’s behaviour.
Executive Function – struggles with planning, controlling inhibitions, mental flexibility, and emotional regulation.
Central Coherence – struggles to retain and express the general gist of a story/situation and prefers specific details.
The ‘Double Empathy Theory’ suggests that a difficulty will arise when there is a mismatch of neurotype. There can be a level of disconnect between those with autism and neurotypicals (people who do not have autism) which can lead to miscommunications. It should not always be a case of expecting a person with autism to adapt; neurotypicals have a role to play too.
An Asset-Based Approach (Actually, We Can!):
Busting the Myths about Autism:
Autism is something to be proud of. It’s important for everyone to embrace their differences!
What is Bullying?
Bullying is when someone or a group of people are mean to others. Bullying is the display of repeated, negative behaviour towards someone - there is often an imbalance of power. People can sometimes be bullied due to their disability, race or sexual orientation.
Different Types of Bullying:
How Does Bullying Make People Feel?
My Experience:
During secondary school, despite my anxieties and insecurities, I found three people who I believed would understand and support me. These friendships were a major breakthrough. However, when I was struggling, they turned against me. They excluded me from activities meaning that I spent break and lunch time alone. They would often talk about me behind my back and question why others would want to befriend me. My confidence was shattered, which led to my mental health deteriorating. Eventually, I had to be withdrawn from mainstream school.
How to Tell the Difference Between a FRIEND and a DNEIRF?
Sometimes, it can be hard to tell a true friend from a fake friend.
A FRIEND is:
A DNEIRF is:
What To Do If You're Being Bullied:
What is Anxiety?
Anxiety is a negative reaction to being unsure of something. ‘Worrying’ or ‘feeling nervous’ are other terms to describe anxiety. Anxiety is normal – everyone feels nervous sometimes. Although, anxiety can become a problem if you feel nervous ALL OF THE TIME. Some people have anxiety disorders, which affect their everyday life. Anxiety can sometimes be confused with adrenaline and excitement – you may get the same tingly feeling in your stomach!
How can I recognise anxiety?
There are many ways that you can tell if you’re anxious. Sometimes, it can be hard to know if you’re worried. Anxiety presents itself differently in different people, but there are certain things to look out for. Some symptoms of anxiety include:
Why am I anxious?
People experience anxiety for many different reasons. Remember, that no reason for feeling anxious is a stupid reason! Anxiety often increases during the teenage years, because people may feel more self-conscious and there’s more expectation to fit in with peers (conformity isn’t always a good thing!) Some reasons why people may feel anxious include:
Neuro-typicals (people who don’t have autism) may worry a lot about big things, such as wedding plans, driving lessons or exams. However, people with autism may have irrational and unusual fears, such as natural disasters occurring or they may worry about very small things, like running out of their favourite food. I once heard a person with autism say they were anxious that they would get stuck behind the radiator. However this may sound to a neuro-typical, it was incredibly real for the person with autism. So, to combat this fear of getting stuck, someone had to measure them and measure the distance between the wall and the radiator. This showed them a concrete example, which would help decrease their anxiety.
How can I manage my anxiety?
There are lots of things that people can do to manage their anxieties, if it’s controlling their everyday lives. Although everyone experiences anxiety at some point during their life, it can sometimes become so severe that people start to withdraw and isolate themselves from others (this can be a very lonely trap!).
People manage their anxieties in different ways, depending on their personal triggers and the severity of their anxiety. I’m going to highlight a few things that could help you cope with your anxious thoughts. I hope they are useful!
5 Point Scale:
The 5 Point Scale is a useful tool for understanding how anxiety can escalate. This scale may help you to recognise what anxiety looks and feels like. You can write or draw things that could help you calm down. The 5 Point Scale can be displayed either at home or in a classroom to remind you of what to do when your anxiety rises. It’s important to try and stay at either a 1 or 2 on the scale so that you’re happy!
The Volcano Concept:
Knowing what makes you anxious is the first step to managing it. You can measure how anxious each trigger makes you, using the volcano concept. For example, at the bottom would be “I am okay” and at the top would be “I’m going to explode.” The aim of this concept is to recognise when you are highly anxious and put strategies in place to help you calm down. This concept is very similar to The 5 Point Scale.
Surviving School
What are the benefits of going to school?
Why might we find school difficult?
School may be challenging for many different reasons. It’s important to realise that other people sometimes find school hard as well. People with autism may struggle at school because:
My Experience:
For me, school was living hell. I struggled throughout primary, and things worsened at secondary. My confidence was shattered, and I felt incredibly self-conscious. It was an isolating experience. Three girls who I considered to be my friend, turned against me and I was left alone. I was too shy to smile or speak to people – I was socially awkward leading to peers thinking I was rude. The school had no understanding of autism and it was a constant battle to get any support, causing us to feel unvalued and exhausted. The unhelpful comments by teachers only heightened my anxiety. My anxiety was debilitating – I was overwhelmed by the smallest of changes. Due to anxiety, I did not eat lunch for six weeks; this had a detrimental affect on my physical health. After numerous meetings, I was placed on a reduced timetable where I attended school twice a week and was home-educated for the remaining time. However, as I was still severely anxious, I was later withdrawn from mainstream education and referred to an alternative provision. This was my lifeline. Overall, my educational experience had a huge impact on my mental health – although my time at school was negative, I am now working to improve the education system for others with autism.
Top Tips for Surviving School!
My Perspective
I find it excruciatingly difficult to make friends because I am extremely shy and struggle to know what to say. I find it easier to communicate online because there is more time to process information and there is not the additional pressures of having to understand body language, facial expressions and tone of voice. I often feel disconnected from others. I have found it difficult to find people who genuinely understand and accept me for who I am.
Why Might We Find Socialising and Making Friends Hard?
Why We May Struggle to Have Conversations:
Conversation Starters and Topics:
People with autism may find conversation difficult for numerous reasons. However, with practise, it can get easier!
Some good conversation starters include:
"What are you doing over the weekend?"
"What do you like to do in your spare time?"
"Have you heard about ... on the news?"
Some conversation topics can include:
- School/Studies/Employment
- Weather
- Hobbies - films, TV, sport, music, crafts
- Family and Friends
- Holidays/Past Experiences
Top Tips for Conversation:
Top Tips for Making Friends:
Top Tips for Socialising:
What's 'Social Thinking' All About?
'Social Thinking' is a concept created by Michelle Garcia Winner. This concept introduces the idea of expected and unexpected behaviours and teaches that our thoughts about people affect our feelings about them. Social detectives (people who have good social skills) use their eyes, ears and brain to make smart guesses about others (work out what people are thinking and feeling).
An Example: At school, I experienced heightened anxiety which made it difficult for me to smile or speak to people. The fact that I constantly had a flat facial expression and looked unhappy, could've made my peers feel uncomfortable which was why they avoided me (I was unintentionally displaying unexpected behaviour, without realising how I was making others feel).
A Parent's Perspective
"My daughter Lauren, who is now 23, is confident, intelligent, beautiful and hardworking. She has worked tremendously hard to earn her degree despite ongoing challenges during her education. Her experiences have motivated her to pursue her dreams of supporting others. Lauren was diagnosed with High Functioning Autism aged 12. The signs of autism became apparent when she was 8. We had numerous meetings at her primary school yet nothing was picked up and it was assumed that her selective mutism was just a 'shy phase.' After a while, we made constant trips to the children's hospital where Lauren's behaviour was observed. We were in contact with paediatricians, social workers, an occupational therapist and an educational psychologist. The diagnosis process was long-winded and daunting - it took 18 months before Lauren was diagnosed. However, when we recieved the official diagnosis, there was a lack of information and support. Teachers still didn't have enough understanding as there were limited resources for them.
Before Lauren was diagnosed, I did not know what was happening or why - I felt lost and helpless. Although I knew I wanted to help my child, I did not know how to. It was on a short break with friends that 'autism' was mentioned. I'd never heard of it, but as soon as I started researching it, everything matched up. I approached the GP who referred me to the Child and Adolescent Mental Health Service (CAMHS) straight away. After Lauren's diagnosis, I felt immediate relief. However, I found navigating mainstream services very challenging as no-one understood, so it was a continual fight to get Lauren the support she needed and deserved. Taking her out of mainstream school was the best decision I ever made.
I would advise getting an official diagnosis for your child as early as you can so that you can get the appropriate support. Knowing your child's support requirements can help with choosing the right educational provision and can give you more scope to ask school staff to implement reasonable adjustments in specific areas. There is support out there, so please seek it. It may be a long journey, but it is worth it. Don't give up."
Please get in touch to if you want to discuss any of the above further
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